In short, we had no idea that Marissa was going to have any problems- we expected a healthy, bouncy baby girl. But, instead we were blessed with a little girl who has Chromosome #2 Duplication. Believe it or not, she is it. No one else in the entire world. Just her. With this disorder, she has developmental delays and several health impairments. We have been back and forth to UVA on a monthly basis. We thought we almost lost her at 3 months old, but she has proven to be stronger and stubborn more then anyone can imagine.
After 3 1/2 years of trying to have a child- God gave me the blessing that I was wishing. I wanted a girl- with no brown eyes. That is exactly what I got! So, I can't ask why this happened to me, right?
Raising a child with nothing to compare her too is very hard and frustrating. There is absolutely no information or connection with parents of a child who is unlike any other. Which is why I decided to do this blog. Share my frustrations and my joy with all who choose to read it.
If you are reading this, welcome to my world.
Oh, and P.S.
In my life, I don't have many good days. I guess it is all how you judge it. Tonight, no temper tantrums, no head banging, no throwing hands on the wall.... a good day.
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