Today, I was listening to Pandora and the old hymnal song "Trust and Obey" came on. It had been forever since I heard this song. I had been going over the events of the day and more news from UVA that wasn't so positive.
For some time now, I have noticed, as well as others, that Marissa wasn't retaining information for long periods of time. It would be like she would learn a new skill or subject matter but if you didn't do it repetitive she would not know how to do it or recall the information. I often tell people, that there are times that I feel like I live in the movie "50 First Dates". According to the doctor, we are. Marissa's brain has "injuries" and her brain just doesn't retain the information or skill like it should. I asked her the question, what does this mean for her in the future. She just shrugged her shoulders and said, "well, she's not going to be able to go to Harvard". We know that Marissa is "smart", but not "smart" like other children her age. She also let us know that Marissa's bladder and bowel issues ARE related to her neurological system. She let us know that a colostomy bag is probably in Marissa's future. So as you can tell, a lot of information to absorb in a thirty minute time period.
A dose of reality. I always think that "maybe one day", is really today. The reality of knowing that what I was feeling was true. Hating that mother instinct. Knowing I can't do anything about it. Can't change it. Don't like it. But, it is what it is. Now what? Just another obstacle that we will have to overcome and work through.
So as I was listening to the song, "Trust and Obey, for there's no other way to be happy in Jesus, is to Trust and Obey". Then I remembered the words that Babbie Mason had shared with our church two weeks ago, "God is too wise, to be mistaken. God is too good to be unkind. When you don't understand, can't see His plan, can't trace His hand, trust His heart".
I know that God has a plan for Marissa. I know that He is using her life to touch others. As disappointed and frustrated that I felt today, I know that He is a good God and He is good to her. I know that she is sealed for Him and whatever comes our way, we will face it together as a family and will continue to Trust and Obey.
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