This is my story of raising a child that has a rare chromosome disorder. In fact, she is the only one in the WORLD with it. It has been challenging and yet wonderful all at the same time. This is our story.
Friday, September 18, 2009
Why am I doing this?
I decided to write this blog for a couple of reasons. The first is to "vent" to the world about all of my ups and downs being a mom of a special needs child and secondly hoping that someone may read this and not feel so alone. Unlike other children, I have nothing to compare to her to and I have no information that would be helpful to predict her future. All I have is the understanding that she is "teaching us". Sometimes this is just not enough.
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